Jan McLaren was diagnosed with sarcoma of the neck three years ago and had to undergo a 12-hour operation to remove a tumour that ran from the top of her spine to her ear.

Sarcoma is cancer affecting bone muscles and nerves and accounts for just one per cent of all cancers diagnosed.

Jan, who is now trying to set up a support group for sarcoma sufferers, said: 'So little is known about this cancer, because it's so rare.

'I remember reading somewhere that doctors will see only one case in their lives. My doctor is about to retire and I asked him how many cases he'd seen. He said I was the only one.

'Because it's so rare it can take longer to get diagnosed as it's not the first thing doctors think of. I'm not saying the NHS failed me in any way, I just want to raise awareness.

'All I had was what felt like a little cyst behind my ear. I'd never felt so well when I was diagnosed.

'All cancers are different and it would really have helped if I could have spoken to someone about what it's like to have sarcoma but there really wasn't anyone else around.'

Following the operation to remove the first tumour, the 57-year-old had two years in remission before the tumour returned and she had to have another operation to remove more of the tissue in her neck. She also received 33 doses of radiotherapy.

She now has two pieces of metal holding her neck in place and restricted movement of her head.

Jan, of The Haven, Gosport, said: 'I've recently discovered there are others with sarcoma living in Poole, Bournemouth, Southsea, and two in Chichester, and I now hope to set up a support group.'