THE message for this year’s Cystic Fibrosis Awareness Week is to tell someone about the condition each day.
The Portsmouth area cystic fibrosis community is planning events to raise awareness and increase people’s knowledge of the condition.
The D-Day 10K race event tomorrow will be supporting CF Awareness Week (today until June 13) by encouraging race participants to take part in the Breathe With Me Strawfie Challenge.
Gemma Daysh, of Farlington, whose 19-month-old daughter Ivy has cystic fibrosis said: ‘The idea is that people try to breathe through a straw for 60 seconds while pinching their nose.
‘This will let them experience, just for one minute, the daily struggle to breathe that many people with CF experience.
‘We then ask people to take a straw-breathing selfie, or “strawfie”, post it on their Facebook page or Twitter, and nominate some of their friends to take part.
‘They can also make a donation by texting BWCF64 £3 (or other amount) to 70070.’
The D-Day 10K race is held at Lakeside North Harbour in Cosham and starts at 10am.
Ivy’s dad Matt Weir said: ‘Our team will be in the Atrium main reception area where registration for the race will take place from 9am.
‘If you’re taking part in the race please bring a mobile phone so that you can join in, take a strawfie, and show support for the 10,000 people in the UK who battle with cystic fibrosis every day of their lives.’
Gemma and Matt’s daughter Ivy was diagnosed with the condition at three weeks old and has to have regular hospital visits, including six-monthly visits to a specialist unit at Southampton.
Cystic fibrosis is a life-shortening genetic condition causing internal organs, especially the lungs and digestive system, to become clogged with mucus, resulting in chronic infections and inflammation of the lungs.
Only half of those diagnosed live to their 40th birthday.