BRAVE Ines Amdouni suffers from a rare facial disorder – but that hasn’t stopped her brightening up the lives of pupils at her school.
The nine-year-old helped to organise a purple day at St Swithun’s Catholic Primary School, Southsea in a bid to raise money for the Moebius Research Trust, which helps to find a cure for Moebius Syndrome.
People with the condition suffer from facial paralysis, which means they can’t form expressions properly.
Youngsters and staff showed their support for the cause at the all-day event by raising £200.
The money was raised through donations, a purple cake sale and a raffle with prizes donated by businesses.
Pupils wore purple clothes and wigs on the day.
Ines and her twin sister Imen, who doesn’t suffer from the syndrome, came up with the idea of holding the day, themed around the colour of the Moebius Research Trust.
Their mum Saliha then set about rallying support from local firms.
Ines said: ‘It was something that me and Imen wanted to arrange together because its not just me who suffers from Moebius Syndrome – people all over the world do too.’
Ines has regular speech therapy and facial physiotherapy sessions to help her tackle the condition.
‘I try to manage the best I can,’ she said.
‘I had a fun time on purple day and everyone was very generous in their giving. Some people contributed £10 notes.
‘My mum is really proud of what we have managed to achieve.
‘Now I want to organise more fundraising events for other charities.’
More cash will be raised for The Moebius Research Trust when another raffle is held at the school on Monday.
Headteacher Anne Jones said: ‘Ines is an inspiration to other children her age.’
She doesn’t let the condition stop her doing anything.’