Pledge made to back sufferers of condition

(l-r) Gabby McLeod (Kim's neice), Kim Manns and (Kim's son) Sam Manns.
(l-r) Gabby McLeod (Kim's neice), Kim Manns and (Kim's son) Sam Manns.

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RELATIVES of a former Pompey player have made the case for why more should be done to help people suffering from motor neurone disease.

Kim Manns, who had a spell at Fratton Park in 1972, was diagnosed with the condition two years ago.

Yesterday his family pleaded with Portsmouth City Council to adopt a legal charter to ensure it is more proactive with patients.

And their request at a meeting was given unanimous support, meaning the authority will sign to 
say it will step up its duty of care.

Mr Manns’ sons said while their father had received great support locally, there were others who had not been given the same treatment.

Christopher Manns said: ‘Not everyone is as lucky.

‘When you look on MND forums, you see people who don’t receive the same level of high quality care he has received.’

Mr Mann’s other son, Samuel, said: ‘The aim is to make sure everybody gets the care they need and deserve.’

Under The Motor Neurone Disease Charter, the council will ensure patients get an early referral to a neurologist, access to information throughout each stage of their condition and access to the right drugs.

They will have early access to palliative care, and will be offered a personal care plan to specify what they need.

The council will also be required to make sure people have access to benefits and carers know what they are entitled to.

The charter says in signing up, organisations give patients ‘the very best opportunity to access care they need to live the highest quality of life possible and achieve dignity in death’.

Councillor Donna Jones, Tory council leader, and Cllr Gerald Vernon-Jackson, Lib Dem group leader, brought forward the charter for discussion.

‘Kim has a real passion for life,’ Cllr Jones said.

‘I am pleased to say we are fully supportive of the MND charter.’

Cllr Vernon-Jackson said: ‘We provide support to many people across the city who are suffering from diseases and illnesses, often in their own homes and people don’t know.’

Mr Manns was present and showed his approval after councillors backed the charter.