Non-uniform fundraiser for rare muscle condition

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CHILDREN have the chance to dress however they like for the day at a charity non-school uniform event.

The fundrasier is being held in St Swithun’s School, Southsea, to raise money for the Moebius Syndrome Foundation.

There will be a raffle at the event and all profits will go the charity which helps people with Moebuis – a rare condition whose sufferers are unable to move the muscles in their face, including their eyes and eyelids. Sometimes hands and feet can be affected too.

The event was the idea of one of the pupils at the school, Ines Amdouni, eight, who has the disorder. There are only 200 cases in the UK.

Her mum, Salia Amdouni, said: ‘We want to help raise awareness of the syndrome so that people know what to look out for.’

The fundraiser takes place on April 23.

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