LIFE coach Boyd Hayward is backing an app that could save lives after death of his sister Rebecca from a epileptic seizure.
The charity SUDEP Action has created EpSMon, which allows epilepsy sufferers to monitor their seizures.
I’m not aware of anything else on the market, so this is unique, and a forerunner for this kind of thing.Boyd Hayward, life coach
Boyd, of Fareham, said: ‘I know that a lot of people with epilepsy will only see their consultant once a year, so this means that if they experience a seizure out of the blue or something’s going on they can put it in the app and get an indication of the risk of further seizures.’
The idea is very similar to a method used by some diabetes sufferers to log their condition and keep ahead of it.
But this app is one of the first on the market to be applied to people with epilepsy.
Boyd said: ‘I’m not aware of anything else on the market, so this is unique – a forerunner for this kind of thing.’
Boyd’s sister Rebecca died in her sleep at her Southampton flat aged 28 in 2012.
She had been diagnosed with epilepsy when she was 12.
Her mum Jeannie Hayward, of Gosport, died three months later after suffering heart failure.
Boyd has spent a lot of time since his sister’s death raising money for epilepsy charities.
He said: ‘We’ve done a couple of things. I reformed and performed with a band I used to be in, making around £1,500.
‘Last year I shaved my head, which raised about £1,400.
‘And we’ve had other friends who have done things for it as well, like my friend who ran a marathon a few years ago and raised a similar figure.’
The EpSMon app costs £1.49 and the profit will be put towards research and development costs.
Chief executive of SUDEP Action, Jane Hanna said help for the charity was always welcomed.
‘We are grateful for all the great work Boyd has done raising awareness of risk in epilepsy and EpSMon,’ she said.
‘People may only see a doctor once a year for epilepsy.
‘This app will help them manage their risk the rest of the time.’
In the UK, 600,000 – or one in every 103 – people has epilepsy.
Every day in the UK, 87 people are diagnosed with the condition.
To find out more on the app go to sudep.org/article/new-epilepsy-self-monitoring