AT THE age of two, doctors said it was unlikely that severely disabled Liam Barron would live to see his eighth birthday.
But after defying the odds Liam, nicknamed ‘Lionheart’ by one hospital team because of his fight and determination, celebrated his 21st birthday in July.
But as the 21-year-old has continued to grow, his medical conditions – which include quadriplegic spastic cerebral palsy, dysphagia and severe scoliosis – have become more complex, meaning that he needs further specialist equipment.
Liam’s mum Sarah Barron, 44, is hoping that an online fundraising page will help her only child get a new adapted bed costing just under £11,000 that he needs to improve his quality of life.
She said: ‘Liam spends the majority of his life at home in bed, so the appropriate bed is paramount to him and his quality of life.
‘He is essentially housebound and the longest time he can tolerate sitting in his wheelchair is an hour, but it can also be as little as five minutes, and when he becomes uncomfortable he struggles to breathe, so because he spends so much time in bed he suffers from bed sores which can cause infections and become life-threatening for Liam because of his conditions.’
The new bed would accommodate Liam’s muscular spasms by moving into different positions and offering better support, it would also allow his carers to move him easier.
The GoFundMe page online has raised more than £3,000 so far from donations, with another £8,000 needed in order to help Liam live a more comfortable life.
Liam was born seven weeks premature and is unable to talk.
He has had more than 30 operations in his life, including major surgery on his back when he was 16 to help with severe curvature of his spine.
Sarah, who lives with husband Neil Greenwood, in Stubbington, said: ‘Liam has a smile that would melt the hardest of hearts and has a wicked sense of humour.
‘I am so proud of such a remarkable, unique and brave young man and each and every day I get to have with him is a blessing.’
To make a donation visit gofundme.com/l7dyss