MOST days for Tony Dyer involve being hooked up to a machine to help him breathe.
The 31-year-old from Fratton was born with cystic fibrosis – a condition that causes the lungs and digestive system to become clogged with thick sticky mucus.
His condition has become so severe that he is in need of a double lung transplant.
So far he has made three trips to Harefield Hospital, in London – including over the Easter weekend – as doctors thought they had found a match.
But sadly each time the transplant has not happened and until the next call he is hooked up to a respirator at Southampton General Hospital for most of the week.
Now his best friend Emma Nye, from Havant, has organised a fundraising night to raise money for Tony’s family so they can use it to help pay for hotel and travel costs to London when he next gets the call, and with parking charges at Southampton.
She said: ‘I have known Tony for years and he’s such a lovely person.
‘It was because of his illness that I have become a nurse.
‘Tony used to play football and work, but now he spends a lot of time in hospital on oxygen.
‘It’s so expensive to park at the hospital all day, but it gets so lonely for Tony to be in the hospital with no one around him.
‘That’s why I have put on this fundraiser as the money would help his family spend time with him.
‘Without his transplant he may only have around six months left to live, that’s why it’s so important people can visit him.
‘And once he gets the call I don’t want for his mum Christine and girlfriend Sophie Bray to worry about the cost to be with him.
‘I want them to have enough money that they can pay for travel and a hotel.’
The night takes place on Saturday at The Irish Club in Elm Grove, Southsea, and includes a charity leg wax – including Tony’s nephew Lenny Dyer who will take part.
There will be a raffle, auction, karaoke and a disco.
Emma added: ‘I want to say thank you to all the different businesses and companies that have donated prizes and helped me to put this evening together.
‘It means a lot to all of us and I am very grateful.’
Tony said: ‘I feel so grateful and proud of the people I have in my life and it’s them who are keeping me alive.
‘Thank you to Emma for organising the night, she has her own family to take care of, but has gone out of her way to make this a night to remember.
‘I also hope this raises awareness of organ donation and cystic fibrosis to others.’
To help raise money, go to gofundme.com/pcmf94